Still Here

Well, we are still here at Primary Children's. Grady had some more seizure activity where this time he would stop breathing and his lips would literally turn blue. Eli and I got pretty good at running to the crib and getting the oxygen to blow in his face until he started breathing again. One time the resident doctor was there when it happened and what did she do? She pulled out her stethoscope and kept saying "well, his heart rate is normal. " Are you joking lady? You pushed me out of the way to say that. Eli told her "Yeah, but his lips are blue!" I wonder if she realized that it would drop drastically if he didn't get oxygen! What a lamo. I guess they don't teach common sense in medical school. The Neuro surgeon said that us bumping his seizure medicine dose to the evening, creating a lapse, and his low sodium levels caused the episodes. They call it Cerebral Salt Wasting where his brain is telling his kidneys to get rid of all of his sodium. They have to regulate it very carefully so it doesn't get too high or too low too fast or it could cause more siezures. They have upped his oral sodium to 1 1/2 teaspoons. The only thing I can think that it tastes like is straight ocean water. Poor kid. He has to have it every four hours and just gags and chokes it down. Sometimes I have to wonder if the doctors even have a plan at all. We keep getting different answers and opinions and it gets pretty frustrating. Eli left this morning to go to Grace to see Axel for a couple of days at least before he heads to Montana on Monday to start his master's degree. Then our little family will be spread out over three states..Eli in Montana, Axel in Idaho, and Grady and I in Utah. Oh the craziness life brings. Well, like Niel says, "in the scriptures it says, and it came to pass, not it came to stay." That is good advice that helps keep us going.


Food...finally after a 28 hour fast. He gulped it down.

There is our little Grady. He is looking more and more like himself.